Update about the daughter of a pair of alums
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Thank you, as always, for continuing to check in on our darling girl and for all the prayers – we really do appreciate them. And thank you for the support you continue to bestow upon our family.
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[JR: Things seem to be going better for one little girl. Continue praying is OK. :-) Nice to hear the good news.
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… for abdominal XRays and they noted that she has a large backlog of stool in her colon. Part of her colon is dilated. This explains the pain in her side, but I was told that a backlog of stool should not in and of itself cause fevers.
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The plan, for now, is to push drinking, give tylenol, give Miralax, and wait to see what the test results and tomorrow brings.
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[JR: Need all those sanitary injuneer prayers now. Worked last time. I hate to think of any child in pain. Other pray-ers fill in as needed.]
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Saturday, November 21, 2009 11:06 PM, EST
Just a quick update to say that {Privacy Shield Invoked} is doing well and the fevers are all gone as of today. YAY! As always, thank you for your prayers. xoxoxoxox
[JR: Good news for Thanksgiving.]
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(For those late to the “prayer party”, one of our fellow alums is Mom to a trio of delightful young children. The “oldest”, 10 ish who like bad jokes, is battling cancer.)
“fever this morning – 103.6 F” and “BAD stomach pain (crying involved) and we are not sure”
[JR: OK, my fellow Jaspers, do your thing. ChemEs pray for relief of the fever, Sanitary the tummy, and EE's pain in general. MEs and CEs and others give "high cover" and standby for specific assignments. Seriously, other than make silliness, what can be done. Can only imagine what Mom, our fellow alum, is going thru. "... I pray to the Lord ..."]
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“Five”
[JR: Hey what do I know about kids agewise -- food in the north end and poop out the south end, change diapers until they turn 18 and go to college. End of problem? LOL! Can't do much other than pass the word along. "Remote" prayers might do some good.]
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… was at the Day Hospital on Wednesday and her counts were right where they should be:
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And after all the Marathon madness, I realized that I completely skipped over Halloween last entry, so I posted the photo of our “Super Girl”. … in was joined by Buzz Lightyear and Minnie Mouse. {Privacy Shield Invoked} was originally going to be Snow White again this year, by like any girl, decided to change her mind. ;) Call me biased here, but I think Super Girl was most appropriate.
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[JR: Counts were they should be. Who the patron saint of exact measurements? I'm sure Brother Austin Barry taught me that, but for the life of me old age has robbed that factoid from me. Maybe there's a patron saint of "super girls" everywhere? Your prayers are requested for this child to keep doing well.]
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still has her nasty cough, especially at night, and it progressed enough that I asked the leukemia team if there was anything we could give her other than the home remedies we were trying. They OK’d her to use a nebulizer twice a day to help relieve the cough. It has helped some, but there is still a way to go. Otherwise, doing well.
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[JR: OK, Jaspers, do we have a coughing prayer in our archive? With children in these heroic battles, there are no "small problems". These are the times that try ... And, we can throw one in for all the parents of sick children everywhere. It's has to test one's faith.]
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ANC: 1.3 [normal 1.5-8.8] [target range for LTM is 1.0-2.0]
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We return for bloodwork next Monday to check her ANC again.
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[JR: OK, I guess we need the ChemE's to lead us in an ANC prayer. The Jasper's child has really ... moved me.]
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FROM THE JASPER WHO’S CHILD IS … … in treatment?
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… … returns to Sloan on Monday for her next bone marrow aspirate, lumbar puncture and IV dose of chemo.
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[JR: OK, Jaspers, let's fire up those rosary beads that Brother's Boys always carry. Some good results would be appreciated. Seems like the "sanitary injineer's prayers" have been effective. Seriously, let's get to work!]
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She continues to get oral chemo every night with a second chemo on Wednesdays. She tolerates it well enough most of the time, but gets nauseous in the mornings about once a week. Her tummy issues aren’t obsolete and she often has pain, constipation and bloating, but are manageable enough with Miralax.
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[JR: OK, my fellow Jaspers, we need some prayers for “constipation”. While it may sound flip, this is a little child we are talking about. So, I think we should be willing to try anything. And, if it impacts one Jasper’s child, it must impact many children. So, I’m for trying anything. Besides, doesn’t MC have a specialty of “sanitary engineering”?]
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“Not like something bumped it; it just hurts” I grew a tad nervous since those two symptoms together are what they tell me to be on the lookout for
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OK, Jaspers, we need some more specific “prayer action” for our fellow Jasper’s daughter.
Now as an injineer, the only headaches I’m familiar with were Prof Zia’s exams and hangovers, the prayers used for them — they usually ended with a lame promise “never again” — are probably not appropriate for this case. But, I’m sure you can find one that’s suitable for cute little girl who caught the … … “soiled” end of the stick. And, doesnt’ complain like I would.
May I have a “headache” prayer?
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